World Kidney Cancer Day 2022
The 6th World Kidney Cancer Day took place on 16 June 2022.
Patients, families, friends, carers, healthcare professionals, researchers and local kidney cancer organisations from around the world came together to raise awareness of clinical trials and access to treatment. They started conversations about how clinical trials can improve access to new treatments for kidney cancer. To improve the lives of kidney cancer patients worldwide ‘We need to talk’.
For a full report of World Kidney Cancer Day 2022, please visit the International Kidney Cancer Coalition (IKCC) website here.
We need to talk about treatment options
Depending on your cancer type, its stage and your quality of life priorities, a range of treatment options may be available to you. Studies show the best outcomes are when patients and doctors make treatment decisions together. But currently not enough conversations are happening.
That’s why the theme for this year’s World Kidney Cancer Day is ‘We need to talk about treatment options’.
Please watch the video opposite for more information or visit our kidney cancer treatments page on our website. On this page, you will find a very useful table listing all the medicines available for advanced kidney cancer in the United Kingdom. You can download this table and take it with you to your next hospital appointment to help with discussions about treatment options with your doctor: Access to kidney cancer medicines in the UK – February 2022.
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Six questions every patient should ask their doctor
Studies show that doctors and patients making treatment decisions together leads to better outcomes and fewer side effects. This document contains the six questions every kidney cancer patient should feel able to ask their doctor.
To help you take an active role in your treatment decisions, you can download and print out these questions and take them with you to your next hospital appointment: Six questions for your doctor.
‘Talking treatments’ webinar
The ‘Talking Treatments’ webinar for World Kidney Cancer Day took place on 16 June 2022 and is now available to view on our website. During the webinar, clinicians, patients and carers discuss how to talk about treatment options and answer questions from patients and carers.
Subtitles are available in 13 languages. To select your preferred language simply click on the Settings icon and select from the list of languages.
Thank you for your support for World Kidney Cancer Day and we trust you find the information presented in the webinar useful.
Watch the webinar here or by clicking on the image opposite:
Clinical trials
Clinical trials are research studies that are key to learning more about kidney cancer and can also give patients access to innovative new treatments. The International Kidney Cancer Coalition (IKCC) global patient survey shows that 89% of kidney cancer patients would consider being part of a clinical trial if they were asked. But fewer than half are ever asked. Of those patients who do take part in clinical trials, the vast majority report having a positive experience.
If you are interested in clinical trials, visit our kidney cancer clinical trials database here and talk to your doctor about whether there are any trials suitable for you. There is also more information about clinical trials on our website.
Also visit our clinical trials experiences page for real stories about taking part in clinical trials. If you have a story to share, we would love to hear from you.
Ask the expert: Clinical trials overview
In this video, Karen McNee talks to Lynn Ho, Uro-oncology Research Nurse at the Western General Hospital in Edinburgh about clinical trials, why they are needed, how to find out about clinical trials, and what happens on a clinical trial.
For more information about clinical trials visit About clinical trials on our website. To find a clinical trial near you visit our Clinical trials database on our website.
More information
The more informed you are about your treatment options, the better conversations you can have with your clinical team. Please visit the following pages on our website for more information:
Essential guides to kidney cancer
About clinical trials and kidney cancer clinical trials database
