Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

11 Dec 2025

Quit smoking this New Year for a healthier you!

8 Dec 2025

89Zr-girentuximab PET/CT effect on management of patients with kidney masses

5 Dec 2025

Five year follow-up of belzutifan for VHL disease

5 Dec 2025

Five-year follow-up results of adjuvant pembrolizumab for kidney cancer

3 Dec 2025

Patient guide on immune-related side effects and their management

3 Dec 2025

UK-US trade deal for medicines

28 Nov 2025

Neoadjuvant therapy helps partial nephrectomy for kidney cancer

21 Nov 2025

Stopping treatment with immunotherapy after immune-related side effects seems to have favourable outcomes

21 Nov 2025

The role of nutrition in kidney cancer care

17 Nov 2025

High-Fibre diet may boost immunotherapy activity in advanced kidney cancer patients

17 Nov 2025

'Helpful in so many ways': Guildford Kidney Cancer Patient Information Day

28 Oct 2025

Belzutifan plus lenvatinib show promise as a second-line treatment for advanced kidney cancer

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer11 hours ago
Smoking is one of the risk factors for the development of kidney cancer, and many other cancers. To help people make healthier choices and to save cash this New Year, the NHS is launching a Quit Smoking campaign, including an app with a free personal quit plan to help you.

See more on our website here:
Action Kidney Cancer
Action Kidney Cancer3 days ago
Is there someone special in your life you would like to show your appreciation to?
Our glass hearts are a great way to do this, it could not be easier, email karen@actionkidneycancer.org with the number of hearts you would like, your chosen words from thank you, support, kindness and friendship and the addresses you want them posted to and add any personal message you would like.
The suggested minimum donation for each heart is £7.50 this includes the postage and packaging.
The money raised from this Christmas campaign will help us to continue supporting families affected by kidney cancer.
Thank you for your support. We are Stronger Together!
To donate please follow the link below:
https://www.justgiving.com/campaign/giftaheart
#giftaheart #kidneycancer #bypatientsforpatients
Action Kidney Cancer
Action Kidney Cancer3 days ago
Further results are available from a trial comparing a diagnostic test called 89Zr-girentuximab PET/CT with conventional CT scans.

In the ZIRCON trial, there were major changes in clinical management for more than a third of patients due to 89Zr-girentuximab PET/CT imaging versus conventional imaging: such as a switch from biopsy to surgery, a switch from surgery to biopsy, partial nephrectomy to total nephrectomy, surgery to addition diagnostic tests and total nephrectomy to partial nephrectomy.

Nearly half of patients would have had a change in their clinical management plan based on 89Zr-girentuximab PET/CT imaging results.

This study confirms that 89Zr-DFO-girentuximab is well tolerated and can accurately identify kidney cancer from a PET/CT scan. This is promising for the management of kidney cancer patients.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer6 days ago
The long-term follow data from a study with belzutifan for the treatment of VHL-related tumours (including kidney cancer), reinforces the fact that belzutifan remains the only approved anti-cancer treatment for VHL-related cancers that do not need immediate surgery.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer6 days ago
Five-year follow-up data from the clinical trial comparing adjuvant pembrolizumab with placebo further support the use of adjuvant pembrolizumab as a standard treatment for patients with kidney cancer at high-risk of returning after surgery.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer6 days ago
Please save the date for our annual Northern Soul and Motown Charity All Day event on Sunday 10 August in Crewe for a full day of great music and dancing. Organised by the fantastic Steve Pointon Counselling and Support and the Pointon family for Action Kidney Cancer.

For more information please follow the link below:

https://actionkidneycancer.org/event/norther-soul-motown-charity-all-dayer-august-2025/

#kidneycancer #bypatientsforpatients #StrongerTogether
[php_everywhere instance="3"]