Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Steve shares his experience of living with kidney cancer

Join our patient support forum for friendly patient-to-patient support and advice

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Newly diagnosed with kidney cancer

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Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

7 Apr 2025

IKCC Global Kidney Cancer Summit

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2 Apr 2025

Europe has approved subcutaneous nivolumab for solid tumours

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28 Mar 2025

The Big Cancer52 Conversation

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24 Mar 2025

A urine test to detect the return of kidney cancer

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24 Mar 2025

Spotting symptoms early: the importance of early diagnosis

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24 Mar 2025

Health-related quality of life with belzutifan versus everolimus for advanced kidney cancer

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10 Mar 2025

Combinations of pembrolizumab and targeted therapies for advanced clear cell kidney cancer

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10 Mar 2025

Safe Sick Pay Campaign Update

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27 Feb 2025

FDA grants Priority Review status for TLX250-CDx for kidney cancer PET/CT scans

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25 Feb 2025

Kidney cancer research highlights from ASCO GU 2025

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19 Feb 2025

Spotting symptoms early: the importance of early diagnosis

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13 Feb 2025

Cancer Research UK - 74,000 cancer patients not treated on time in 2024

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Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer5 days ago
We are now home from attending the @IKCC Global Conference in Madrid, we have had a fantastic three days of learning and sharing our thoughts with 60 of the IKCC affiliates from around the world.

We are now thinking how best to use this learning to help shape how we continue supporting kidney cancer patients and their families in the United Kingdom.

#kidneycancer #bypatientsforpatients #IKCC2025
Action Kidney Cancer
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Action Kidney Cancer
Action Kidney Cancer6 days ago
Julia Black, Karen McNee and Steve Pointon have just returned from the the 15th International Kidney Cancer Coalition (IKCC) Global Kidney Cancer Summit on 4th – 6th April 2025 in Madrid, Spain. This annual event brings together over 50 patient organisations and charities from around the world to share best practises for the benefit of the care and treatment of kidney cancer patients on a global basis.

Read more on our website here:
Action Kidney Cancer
IKCC Global Kidney Cancer Summit - Action Kidney Cancer
Julia Black, Karen McNee and Steve Pointon represented UK kidney cancer patients at the 15th International Kidney Cancer Coalition (IKCC) Global Kidney Cancer Summit on 4th – 6th April 2025 in Madrid, Spain.
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Action Kidney Cancer
Action Kidney Cancer1 week ago
Happy Sunday from some of our team.

Today is the last day of the IKCC Global Kidney Cancer Conference in Madrid.

We have been connecting with patient organisations sharing our experience and learning from others, new ideas to help continue supporting kidney cancer patients in the United Kingdom.

We have also had some time to catch up with old friends and to make new ones.

#kidneycancer #IKCC2025 #bypatientsforpatients
Action Kidney Cancer
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Action Kidney Cancer
Action Kidney Cancer1 week ago
Day two of IKCC Global Kidney Cancer Conference has started we have been networking and sharing our experiences of supporting kidney cancer patients.

We have also been listening to new idea's being shared by other patient organisations around the world and hope to learn from them.

#kidneycancer #ikcc2025 #bypatientsforpatients
Action Kidney Cancer
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Action Kidney Cancer
Action Kidney Cancer1 week ago
We are delighted to be representing the patient voice at this years IKCC Global Kidney Cancer Conference in Madrid.

In the coming weeks we hope to share with everyone our experience and learnings.
Action Kidney Cancer
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Action Kidney Cancer
Action Kidney Cancer2 weeks ago
Good news for people who are taking nivolumab: the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA) has recommended approval for an injectable form of nivolumab for the treatment of solid tumours, including advanced kidney cancer. This means that it will shortly become available to patients in EU countries, and hopefully the UK will follow suit very soon. This new form of nivolumab is yet to be approved for use in the UK by the regulators.

Read more on our website here:
Action Kidney Cancer
Europe has approved subcutaneous nivolumab for solid tumours - Action Kidney Cancer
The Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA) has recommended approval for an injectable form of nivolumab for the treatment of solid tumours, including advanced kidney cancer.
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