Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

16 Oct 2025

Kidney cancer microscope cuts patient waits in Cambridge

8 Oct 2025

New treatment, casdatifan, shows promise in previously treated kidney cancer

7 Oct 2025

Bevacizumab plus erlotinib shows antitumor activity in advanced papillary kidney cancer

29 Sep 2025

Coalition for Reducing Bureaucracy in Clinical Trials 2025 Recommendations

29 Sep 2025

Kidney cancer cases are projected to double by 2050

25 Sep 2025

Cancer waiting times: Latest updates

18 Sep 2025

First NICE guideline on kidney cancer

17 Sep 2025

KIM-1 as a potential biomarker for kidney cancer

16 Sep 2025

Stoptober is back!

11 Sep 2025

Audit of NHS shows only 1% of kidney cancer patients are enrolled in clinical trials

4 Sep 2025

Impact of first-line combination treatment on outcomes of second-line TKI in advanced kidney cancer

4 Sep 2025

First-line benmelstobart plus anlotinib versus sunitinib in advanced kidney cancer

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer5 days ago
On the 13th October we hosted a kidney cancer patient day in Sheffield with the help and support of the staff from Weston Park Hospital.

Thank you to the Uro-Oncology team at Weston Park Hospital and the speakers who on the day provided for patients presentations on a variety of related topics including managing side effects, treatments, patient stories, dietary advice and much more.

Thank you to the patients who joined us on the day, their feedback was excellent and we asked them to provide three words that described the day, some of the words they came back with included: Supportive, informative, inclusive, interesting, positive, reassuring, inspirational and moving....

When we work with excellent health care professionals and patients it shows we are are #StrongerTogether!
To find out more about our patient days please follow the link below:
https://actionkidneycancer.org/.../patient-information-days/

#bypatientsforpatients #kidneycancer
Action Kidney Cancer
Action Kidney Cancer5 days ago
We would like to say a massive thank you to Joanna and Mikaela who completed on the 12th October the Bournemouth Supernova 5K run to raise funds for us.

We would like to thank their family and friends for donating to their funding raising.

If you would like to donate to their fundraising pages you can do so by following the links below:

https://kcsn.enthuse.com/pf/joanna-farr

https://kcsn.enthuse.com/pf/mikaela-hed

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer6 days ago
The kidney cancer clinic at Addenbrooke's Hospital in Cambridge is using a new microscope capable of diagnosing biopsy samples within minutes instead of days or weeks. This confocal microscope is the first to be used in this manner in the UK as a "one-stop" kidney clinic.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
On Tuesday the 7th October we hosted a kidney cancer patient day in Truro with the help and support of the staff from Royal Cornwall Trust.
On the day we had speakers on a range of related topics and patients had the opportunity to speak with each other and share their experience of living with kidney cancer.
Feedback echoed by many on the day included 'I felt the day was very informative, it was great to meet others in the same situation. I went away feeling happy!'
Thank you to the Uro-Oncology team at the Royal Cornwall Trust, the speakers and the patients who joined us for this great day.

We are #StrongerTogether!

To find out more about our patient days please follow the link below:
https://actionkidneycancer.org/help-support/patient-information-days/

#bypatientsforpatients
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
A new treatment called casdatifan showed promising responses in a phase 1 trial looking at the best dose to use for previously treatment patients with advanced kidney cancer. More than a third of patients responded to treatment, and the time to when the treatment stopped working and the cancer started growing again (progression-free survival) was a year, which is very promising in patients who are on their second, third, fourth or even fifth line of treatment.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
A promising new treatment for a hereditary form of kidney cancer:

A recent study has shown that a combination of an immunotherapy called bevacizumab and a TKI called erlotinib was highly effective in an hereditary form of papillary kidney cancer, called hereditary leiomyomatosis renal cell carcinoma (HLRCC)-associated papillary RCC.

Read more on our website here:
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