We are delighted to have been asked by the University of Glasgow to build awareness of the 'Patient reported outcomes study' by asking patients to complete this survey.

If you have a diagnosis of advanced kidney or liver cancer, we’d like you to take part.

The survey is part of a larger project (the PROMs project) organised by the University of Glasgow and the European Oncology Nursing Society, and will help better understand the patient perspective of living with advanced kidney or liver cancer.

The survey will take you around 15-20 minutes to complete.

Please also note that you don’t have to take the whole survey at once. You can start and then click ‘Finish later’ at the bottom of your screen, and can come back to it when you have time.

To read more about the survey and to start please follow the link below:

https://actionkidneycancer.org/research/patient-reported-outcome-measures-survey/

#kidneycancer ]#bypatientsforpatients #StrongerTogether

O is for one to one support

If you are looking for some one to one support where you can share with someone your thoughts in a safe space or you are looking for specific information about your diagnosis, we can help.

We offer this in a variety of ways, including our one to one helpline, email support and community forum.

To access these services please follow the link below:

https://actionkidneycancer.org/help-support/
#kidneycancer #bypatientsforpatients #StrongerTogether

Please join us this summer by hosting a Mad Hatters Tea Party.

Mad Hatter’s tea parties will be taking place during the summer months, just choose your date!

There is something for everyone; it can be big or small, in your garden, at a hall or virtually; the choice is yours.

Every afternoon tea is enjoyed as a way to help us support families affected by kidney cancer.

To host a Mad Hatter’s Tea Party it could not be easier; all you need is some sweet treats, a crazy hat and you are good to go!

For information and tips on how to host you tea party, please follow the link below:

https://actionkidneycancer.org/get-involved/mad-hatters-tea-party/

#kidneycancer #madhatters #StrongerTogether

As part of World Kidney Cancer Day 2022 a 'Talking treatments’ webinar was hosted on the 16th June 2022.

During the webinar, clinicians, patients and carers discussed how to talk about treatment options and answer questions from patients and carers.

If on the day you were unable to attend the webinar, the webinar is now available to view on our website.

Subtitles are available in 13 languages. To select your preferred language simply click on the Settings icon and select from the list of languages.

Thank you for supporting World Kidney Cancer Day and we trust you will find the information shared in the webinar useful.

To watch the webinar please follow the link below:

https://actionkidneycancer.org/get-involved/wold-kidney-cancer-day/

#kidneycancer #bypatientsforpatients #StrongerTogether

As a follow on from yesterday World Kidney Cancer Day activity, we thought it would be useful to share with you our latest kidney cancer medicines table.

This table lists the status of individual kidney cancer medicines in England, Wales, Scotland, and Northern Ireland, and whether they are available within the NHS in each individual country.

You may wish to read this prior to meeting with your consultant to discuss your treatment options.

To read the table:

https://actionkidneycancer.org/kidney-cancer/kidney-cancer-treatments/kidney-cancer-medicines/
#kidneycancer #bypatientsforpatients #StrongerTogether