Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

14 May 2025

Kidney cancer becoming more common in younger people?

30 Apr 2025

UK regulators approve injectable form of nivolumab for solid tumours

28 Apr 2025

Immunotherapy for the treatment of non-clear cell kidney cancer

7 Apr 2025

IKCC Global Kidney Cancer Summit

2 Apr 2025

Europe has approved subcutaneous nivolumab for solid tumours

28 Mar 2025

The Big Cancer52 Conversation

24 Mar 2025

A urine test to detect the return of kidney cancer

24 Mar 2025

Spotting symptoms early: the importance of early diagnosis

24 Mar 2025

Health-related quality of life with belzutifan versus everolimus for advanced kidney cancer

10 Mar 2025

Combinations of pembrolizumab and targeted therapies for advanced clear cell kidney cancer

10 Mar 2025

Safe Sick Pay Campaign Update

27 Feb 2025

FDA grants Priority Review status for TLX250-CDx for kidney cancer PET/CT scans

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer4 days ago
As a charity we have noticed that more younger people are coming to us with a diagnosis of kidney cancer. Our concerns have been realised in a study conducted by American researchers, which has identified an increase in the incidence of breast, bowel, womb, pancreatic, and kidney cancers in individuals under 50 years of age.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer6 days ago
Pleased to share this link to to an important international clinical trial. The CARE1 clinical trial will look at how different groups of patients respond to 1st line treatment with the intention of discovering which patients are more likely to respond to which combination of drugs. This could mean we could have evidence at long last about which drugs works work best for which patients, no more trial and error and no more wasted time & money and if we find out that certain biomarkers can be relied upon to make the right decisions about drug choice.
IKCC and Action Kidney Cancer are represented on the Management committee of this important international Clinical Trial.
Action Kidney Cancer
Action Kidney Cancer1 week ago
Following a report published by Mission Remission one of our colleagues Steve Pointon Counselling and Support has just recorded an interview with BBC Radio 4 about the effects Cancer has on finances.
The interview will be played after the 12:00 news on Saturday ( at approx 12:04 ). It may also make BBC Breakfast TV on Saturday, but that is subject to the news on that day.

Those of you who know Steve will know this is a subject he is very passionate about and is very close to is heart.

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer1 week ago
It is lovely to see the sunshine, this is a great time to start thinking of meeting up with friends and loved ones.

It is also a great time to plan and host a Mad Hatters Tea Party and raise some funds for us at the same time.

Big or small, tea and a cake or a full afternoon tea, the choice is yours.

To get started please follow the link below, where you will find lots of great ideas on host your party.

https://actionkidneycancer.org/get.../mad-hatters-tea-party/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
We are delighted that Gary Wiggelsworth and his three friends will be riding 346 km along the Trans Pennine Trail on the 2nd June to challenge themselves and raise funds for Action Kidney Cancer to help improve the lives of those affected by kidney cancer.

Gary was diagnosed with kidney cancer two years ago, without any signs or symptoms. He feels blessed, lucky and grateful, and would like to do his bit to help others through similar challenging times.

To make a donation to Gary's fundraising and find out more about his story please follow the link below

https://actionkidneycancer.org/event/garys-trans-pennine-trail-june-2025/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
The Benefact Group have just informed us to say they have upped the prize award for the winners to £5,000.
If you have not yet voted for us, please take a minute over the weekend and do so.
The voting closes at midnight on Sunday the 4th of May, thank you.
Please use the link below to vote:
#nominateACharity" target="_blank" rel="noreferrer">https://health.movementforgood.com/index.php?cn=1164238&ct=health&i=1746171364-90220.jpg&utm_source=holiday+card&utm_medium=social&utm_campaign=M4G2024card&utm_id=M4G2024card#nominateACharity

#kidneycancer #bypatientsforpatients #StrongerTogether
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