Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Help & support

Community Forum

Stronger together

Join now

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective
Watch all

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer
Read real stories

Latest kidney cancer news

21 Jun 2022

ASCO 2022: Sequencing of kidney cancer medicines

15 Jun 2022

High street pharmacies spot cancers in new NHS early diagnosis drive

14 Jun 2022

Sequencing of treatments for advanced/metastatic kidney cancer

8 Jun 2022

Three years follow-up data from the belzutifan study for pre-treated metastatic kidney cancer

8 Jun 2022

Does the size of response to cabozantinib plus nivolumab affect clinical outcomes?

8 Jun 2022

Can durvalumab or savolitinib alone or in combination with tremelimumab improve survival in patients with metastatic kidney cancer?

8 Jun 2022

Can adjuvant everolimus prevent recurrence following surgery?

8 Jun 2022

Is early treatment with adjuvant therapy healthy, cost effective and wise: the patient perspective?

8 Jun 2022

Scottish Government's new 10-year cancer strategy

7 Jun 2022

Health and Care Bill now an Act of Parliament

7 Jun 2022

Psychological wellbeing of people with cancer

7 Jun 2022

We cannot meet the mental health needs of cancer patients without breaking down silos

Check all news
We've been asked by the University of Glasgow to build awareness of the 'Patient reported outcomes study'
Are you an adult living with advanced #kidneycancer or advanced #livercancer?
If so this international #survey is now open. Please have your say:
https://t.co/S72J8VoSKj https://t.co/1UdKW0SuXa
ACTION4KC photo
O is for one to one support
We offer support in a variety of ways, where you can share your thoughts in a safe space or if you are looking for specific information about your #kidneycancer diagnosis please follow the link to access our support services:

https://t.co/mylsCasrXU https://t.co/fsteZ6NENW
ACTION4KC photo
Join us this summer by hosting a #MadHattersTeaParty
to raise funds to support families affected by #kidneycancer it could not be easier, all you need is some sweet treats, a crazy hat and you are good to go!
For information on how to host your tea party:
https://t.co/RMWtGXZ8Cz https://t.co/ApsXRgXmn4
ACTION4KC photo
As part of #WKCD2022 a 'Talking treatments’ webinar was hosted by @IKCC. If you were unable to attend the webinar, you can now watch a recording on our website:
https://t.co/wPwUYXhRFR
#kidneycancer #bypatientsforpatients #StrongerTogether https://t.co/DxiVp01bSF
ACTION4KC photo
Action Kidney Cancer has joined more than 50 cancer charities in signing a letter to @sajidj on the forthcoming 10-Year Cancer Plan. The letter from the #OneCancerVoice coalition comes as the final details of the plan are being considered.
Read more➡️ https://t.co/g8m1a5vsIl https://t.co/6X5taCBL6P
ACTION4KC photo
Today, with 50+ cancer charities, we are writing to @sajidjavid setting out our expectation for next month’s #10yearcancerplan #OneCancerVoice
It must be:
✅Fully planned,costed and funded
✅Address shortages in the cancer workforce
✅Match ambition with accountability https://t.co/VgDWW65fbG
ACTION4KC photo
Follow on Twitter
Action Kidney Cancer
Action Kidney Cancer
We are delighted to have been asked by the University of Glasgow to build awareness of the 'Patient reported outcomes study' by asking patients to complete this survey.

If you have a diagnosis of advanced kidney or liver cancer, we’d like you to take part.

The survey is part of a larger project (the PROMs project) organised by the University of Glasgow and the European Oncology Nursing Society, and will help better understand the patient perspective of living with advanced kidney or liver cancer.

The survey will take you around 15-20 minutes to complete.

Please also note that you don’t have to take the whole survey at once. You can start and then click ‘Finish later’ at the bottom of your screen, and can come back to it when you have time.

To read more about the survey and to start please follow the link below:

https://actionkidneycancer.org/research/patient-reported-outcome-measures-survey/

#kidneycancer ]#bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
O is for one to one support

If you are looking for some one to one support where you can share with someone your thoughts in a safe space or you are looking for specific information about your diagnosis, we can help.

We offer this in a variety of ways, including our one to one helpline, email support and community forum.

To access these services please follow the link below:

https://actionkidneycancer.org/help-support/
#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
Please join us this summer by hosting a Mad Hatters Tea Party.

Mad Hatter’s tea parties will be taking place during the summer months, just choose your date!

There is something for everyone; it can be big or small, in your garden, at a hall or virtually; the choice is yours.

Every afternoon tea is enjoyed as a way to help us support families affected by kidney cancer.

To host a Mad Hatter’s Tea Party it could not be easier; all you need is some sweet treats, a crazy hat and you are good to go!

For information and tips on how to host you tea party, please follow the link below:

https://actionkidneycancer.org/get-involved/mad-hatters-tea-party/

#kidneycancer #madhatters #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
As part of World Kidney Cancer Day 2022 a 'Talking treatments’ webinar was hosted on the 16th June 2022.

During the webinar, clinicians, patients and carers discussed how to talk about treatment options and answer questions from patients and carers.

If on the day you were unable to attend the webinar, the webinar is now available to view on our website.

Subtitles are available in 13 languages. To select your preferred language simply click on the Settings icon and select from the list of languages.

Thank you for supporting World Kidney Cancer Day and we trust you will find the information shared in the webinar useful.

To watch the webinar please follow the link below:

https://actionkidneycancer.org/get-involved/wold-kidney-cancer-day/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
During the American Society of Clinical Oncology (ASCO) Annual Meeting earlier this month, there was a discussion about the order medicines should be given for people with advanced kidney cancer.
Read more on our website here: https://actionkidneycancer.org/asco-2022-sequencing-of-kidney-cancer-medicines/
Action Kidney Cancer
Action Kidney Cancer
As a follow on from yesterday World Kidney Cancer Day activity, we thought it would be useful to share with you our latest kidney cancer medicines table.

This table lists the status of individual kidney cancer medicines in England, Wales, Scotland, and Northern Ireland, and whether they are available within the NHS in each individual country.

You may wish to read this prior to meeting with your consultant to discuss your treatment options.

To read the table:

https://actionkidneycancer.org/kidney-cancer/kidney-cancer-treatments/kidney-cancer-medicines/
#kidneycancer #bypatientsforpatients #StrongerTogether
Follow on Facebook