Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

9 Jan 2025

NHS England's Elective Care Reform Plan

8 Jan 2025

FDA approves injectable form of nivolumab

6 Jan 2025

NHS Help Us, Help You campaign

20 Dec 2024

NHS National Cancer Patient Experience Survey

9 Dec 2024

Promising new immunotherapy combination for advanced kidney cancer

5 Dec 2024

New treatment for pretreated advanced kidney cancer shows promise

18 Nov 2024

Cancer waiting times - latest updates

15 Nov 2024

The Big Cancer52 Conversation

12 Nov 2024

How to manage side effects to cabozantinib and nivolumab

1 Nov 2024

Government commits to a 'stand-alone cancer strategy'

31 Oct 2024

First CAR T-cell therapy for kidney cancer given Advanced Therapy designation by the FDA

28 Oct 2024

National Kidney Cancer Audit for England and Wales

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer2 days ago
A clinical trial of a new cancer vaccine has opened at 5 sites in the UK.

This study investigates the effectiveness and safety of a combination of V940 injection (a cancer vaccine) plus a pembrolizumab infusion (an immunotherapy) compared to pembrolizumab plus placebo as an adjuvant treatment for patients who have had surgery to remove their cancer. An adjuvant treatment is a medication that is given after surgery to kill cancer cells that remain after surgery.

The study is for people who have a type of kidney cancer called clear cell renal cell carcinoma (RCC) or papillary RCC, which is at moderate or high risk of returning. It is also for people whose cancer has started to spread into surrounding tissue or to other parts of the body, but do not have any symptoms of this.

This study aims to find out:

1. Whether V940 plus pembrolizumab is better than placebo plus pembrolizumab at improving disease-free survival
2. Information about the side effects of these treatment in kidney cancer patients.

The study is open in Cambridge, Edinburgh, Glasgow, Manchester and London.

For more information and site contact details, please visit our clinical trials database on our website:
Action Kidney Cancer
Action Kidney Cancer1 week ago
On 6 January 2025, NHS England launched their plan to reform elective care in England. The new NHS England’s Elective Care Reform Plan aims to deliver three key changes:

1. More convenient access to care.
2. Improved patient experience.
3. Improved waiting times.

Also within the plan is cancer pathway improvement work, with support from Cancer Alliances.

We hope these reforms will ultimately help to improve cancer patient experiences and outcomes.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer1 week ago
Just after Christmas, the US Food and Drug Administration (FDA) granted approval for an injectable form of nivolumab for the treatment of most previously approved solid tumours, including advanced kidney cancer. The injectable form of nivolumab can be given alone, as maintenance therapy following completion of nivolumab plus ipilimumab combination treatment, or in combination with chemotherapy or cabozantinib.

This new option for giving nivolumab as a single injection administered in less than five minutes (compared to a 30-minute intravenous infusion of nivolumab), could transform the treatment experience for both patients and doctors.

This new form of nivolumab is not yet approved for use in the UK by the regulators. We will keep you informed of the approval process in the UK.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer1 week ago
If you would like to start the New Year by setting yourself a personal challenge, a great way to do this is by signing up to join one of the Ultra Challenge Events.

The 2025 Ultra Challenge Series is open for registrations, and hundreds of keen fundraisers are thinking of their next big fundraising challenge.

If you are a walker or runner looking for a challenge or perhaps you want to get in shape, re-energise, or maybe you or a family member would like to fundraise for us?

If so, these events are for you! Whether it’s along a stunning coastline, or on trails in the best of Britain’s countryside, your Ultra Challenge will be unforgettable. With full support all the way, new friends made, and an amazing sense of achievement.

The 2025 events calendar is live for registrations.

To find out more, sign up soon and begin your journey on one of the 18 Ultra Challenge Events in 2025 please follow the link below:

https://actionkidneycancer.org/event/ultra-challenge-events-2024/#

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
We know that many people worry about cancer but sometimes put off getting checked because they hope the symptoms will go away or think they will get bad news. But finding cancer early makes it more treatable and can save lives.

It’s important that if you are worried about a symptom that could be cancer, to contact your GP practice. To rule out cancer, your GP may refer you for tests. Whatever the result, your NHS is here for you.

Don’t carry the worry of cancer with you, if something in your body doesn’t feel right, contact your GP practice. Until you find out, you can’t rule it out. For more information on cancer signs and symptoms go to
Action Kidney Cancer
Action Kidney Cancer4 weeks ago
We send warm wishes for the festive season to all of the patients and families whose lives we have touched and those we have yet to meet, our fundraisers, supporters and everyone we have worked with throughout the year.

We realise that at this time patients and families may still need to be supported and we are here to help.

To listen and read accurate information or to join our on line patient support forum and much more..... please follow the link below to our website:

https://actionkidneycancer.org/

#kidneycancer #bypatientsforpatients #StrongerTogether
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