Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

12 Apr 2024

Immunotherapy combinations versus TKIs for papillary renal cell carcinoma

9 Apr 2024

CAR T cell immunotherapy shows promise for patients with kidney cancer

9 Apr 2024

Real world data on the use of cabozantinib plus immunotherapy in the second line

25 Mar 2024

How to manage anxiety and depression when you have kidney cancer

12 Mar 2024

Immunotherapy improves survival in kidney cancer patients with brain metastases

8 Mar 2024

Radiotherapy for the management of renal medullary carcinoma

8 Mar 2024

Manchester patient focus group

8 Mar 2024

NICE approves cabozantinib plus nivolumab for advanced kidney cancer

15 Feb 2024

PRISM study highlights possibility of reducing dose of immunotherapy

15 Feb 2024

World-class radiotherapy in the UK

7 Feb 2024

Summary of kidney cancer highlights from ASCO GU 2024

2 Feb 2024

Cancer treatment could identify patients most likely to respond to cancer drugs

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer11 hours ago
In this last week we have been very busy representing kidney cancer patients at a variety of different events. We attended the seventh annual International Kidney Cancer Conference in Seoul Korea.

Steve Pointon one of our colleagues was one of the guest speakers at the event, sharing his experience of living with kidney cancer.

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer11 hours ago
Today we are in London representing the voice of kidney cancer patients and supporting the launch of Cancer52’s Manifesto for rare and less common cancers, and its three key asks: To reduce mortality and health inequalities, increase early diagnosis, and put patients at the core of a new nation mission on rare and less common cancers.

#kidneycancer #bypatientsforpatients #StrongerTogether #c52manifesto
Action Kidney Cancer
Action Kidney Cancer5 days ago
Papillary renal cell carcinoma (pRCC) is the most common subtype of non-clear cell kidney cancer. People with papillary RCC are often excluded from large phase 3 trials, which focus on the more common form of kidney cancer, clear cell RCC. Therefore, treatment options for non-clear cell kidney cancers are limited. The aim of this study was to look at the effectiveness of immunotherapy combinations compared to TKIs for the treatment of previously untreated patients with papillary RCC.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer1 week ago
Chimeric antigen receptor (CAR) T cell therapy is a type of immunotherapy that changes T cells so they are able to recognise and attack cancer cells.

T cells are immune system cells that play several key roles in the body’s fight against disease. They help the immune system respond to disease and they attack and kill abnormal cells. Unfortunately, naturally occurring T cells in patients with cancer are not good at recognising and fighting cancer cells.

Results from a study in America have shown that more than 80% of patients with advanced kidney cancer benefited from CAR T cell therapy.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer1 week ago
A recent study looked at the use of a combination of immunotherapy plus cabozantinib as a second treatment for patients with metastatic kidney cancer compared to cabozantinib alone in the real world.

Read more on our website here: https://actionkidneycancer.org/cabozantinib-plus-immunotherapy-for-metastatic-kidney-cancer/
Action Kidney Cancer
Action Kidney Cancer3 weeks ago
Thank you to Siew and Charlotte, their family and friends, Martine the minister, all the back stage organisers at the church of St Michael's in Chiswick, and the musicians who organised and created a wonderful concert in memory of Siew's husband John.

We were entertained wonderfully by great musicians and singers and had the opportunity to sing along and dance in the aisles of the beautiful St Michaels church in Chiswick.

We would also like to thank all the local suppliers who so generously donated to the raffle.

They have raised over £4,000 for us, a truly remarkable amount at a remarkable event, full of joy and a great sense of community.

Thank you from us!!

if you would like to watch the concert or contribute to Siew's fundraiser please follow the link and scroll down to John Walton Memorial Concert for all information:

https://actionkidneycancer.org/get-involved/fundraising/

#kidneycancer #bypatientsforpatients #StrongerTogether
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