Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

21 May 2025

The financial implications of a cancer diagnosis

19 May 2025

Cancer waiting times: latest updates

14 May 2025

Kidney cancer becoming more common in younger people?

30 Apr 2025

UK regulators approve injectable form of nivolumab for solid tumours

28 Apr 2025

Immunotherapy for the treatment of non-clear cell kidney cancer

7 Apr 2025

IKCC Global Kidney Cancer Summit

2 Apr 2025

Europe has approved subcutaneous nivolumab for solid tumours

28 Mar 2025

The Big Cancer52 Conversation

24 Mar 2025

A urine test to detect the return of kidney cancer

24 Mar 2025

Spotting symptoms early: the importance of early diagnosis

24 Mar 2025

Health-related quality of life with belzutifan versus everolimus for advanced kidney cancer

10 Mar 2025

Combinations of pembrolizumab and targeted therapies for advanced clear cell kidney cancer

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer4 hours ago
An interesting international clinical trial has now opened in the UK and is recruiting patients. The CARE1 clinical trial will look at how different groups of patients respond to 1st line treatment with the intention of discovering which patients are more likely to respond to which combination of drugs.

With the use of biomarkers, the results of this study will hopefully tell us which medicines work best for individual patients. This will remove the need for trial and error when selecting the best treatment option, reducing the time and money that is used to find the best treatment.

The International Kidney Cancer Coalition (IKCC) and Action Kidney Cancer are represented on the Trial Management Committee of this important international study.

The study is now on our clinical trial database. The first site to open is Prof Tom Powles at Queen Mary's Hospital in London. Nine further sites are planned for the UK - watch this space!

For more information, please visit our clinical trial database here:
Action Kidney Cancer
Action Kidney Cancer1 day ago
Following on from the Safe Sick Pay campaign that Steve Pointon from Action Kidney Cancer was involved with, Steve was asked to share is story with Mission Remission for a series of articles and interviews about the financial implications of a cancer diagnosis.

Read Steve's engaging story on our website here:
Action Kidney Cancer
Action Kidney Cancer3 days ago
The International Kidney Cancer Coalition (IKCC ) World Kidney Cancer Day is on the 19th June 2025, please save the date.

This year the theme is ‘Show your kidneys some love’

The IKCC 2025 global survey revealed that many patients and carers are unsure how to keep their kidneys healthy.

In the lead up to the 19th June we will be sharing information with you on kidney health and how to join the Global Symposium.

To find out more and how to get involved in World Kidney Cancer Day please follow the link below:

https://actionkidneycancer.org/get-involved/world-kidney-cancer-day-2025/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer3 days ago
Pressure on NHS cancer services has been increasing, causing delays in access for patients.

Quick cancer testing, diagnosis, and treatment reduce stress and improve outcomes, especially when cancer is caught early.

December 2023 marked the first report of cancer waiting times based on new NHS England targets. Cancer Research UK’s latest article shares the results for March 2025 in England.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer1 week ago
As a charity we have noticed that more younger people are coming to us with a diagnosis of kidney cancer. Our concerns have been realised in a study conducted by American researchers, which has identified an increase in the incidence of breast, bowel, womb, pancreatic, and kidney cancers in individuals under 50 years of age.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer1 week ago
Pleased to share this link to to an important international clinical trial. The CARE1 clinical trial will look at how different groups of patients respond to 1st line treatment with the intention of discovering which patients are more likely to respond to which combination of drugs. This could mean we could have evidence at long last about which drugs works work best for which patients, no more trial and error and no more wasted time & money and if we find out that certain biomarkers can be relied upon to make the right decisions about drug choice.
IKCC and Action Kidney Cancer are represented on the Management committee of this important international Clinical Trial.
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