Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

7 Oct 2024

Multi-million-pound UK-wide research into cancer immunotherapy

1 Oct 2024

ASTRO 2024: SABR for primary kidney cancer – Is it ready for 'primetime'?

1 Oct 2024

Clinical impact of the CARMENA trial on cytoreductive nephrectomy in the USA

27 Sep 2024

Kidney Cancer Highlights from ESMO 2024

27 Sep 2024

Pazopanib plus bevacizumab shows promise as a first-line treatment for kidney cancer

27 Sep 2024

Biopsy of small renal masses leads to fewer radical nephrectomies

12 Sep 2024

89Zr-DFO-girentuximab for PET/CT imaging of kidney cancer

6 Sep 2024

Intermittent immunotherapy in patients with metastatic kidney cancer

6 Sep 2024

Patient perspectives on reduced treatment schedules for immunotherapy

5 Sep 2024

Belzutifan available on the NHS for patients with VHL disease

5 Sep 2024

The Big Cancer52 Conversation

4 Sep 2024

Belzutifan compared to everolimus for advanced kidney cancer

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer4 days ago
Good morning please can you help us?

This weekend if you have a spare 15 - 20 minutes of your time your lived experience could make a difference to kidney cancer patients.

The 2024 IKCC Global Patient Survey on Kidney Cancer and Growths is now OPEN, we at Action Kidney Cancer have been involved in writing the question for patients living in the United Kingdom.

Please join kidney cancer patients and carers who have been invited globally to share their experiences and insights in the online survey to ensure your voice is heard.

To complete the survey and for more information please follow the link below:
https://actionkidneycancer.org/get-involved/2024-ikcc-global-patient-survey/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer6 days ago
Please can you help us? we are looking to update the images on our virtual Christmas Cards.
If you have taken any photographs that you think would be suitable please can you share them with fundraising@actionkidneycancer.org

Many thanks in advance for your help with this.

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer6 days ago
We want to say a MASSIVE thank you to Katie Parry who completed on 13th September, a skydive from 15,000 feet, including 60 seconds of free fall, in memory of her grandfather and his friend who died of kidney cancer and to fundraise for us.

Kidney cancer has affected so many people in her family and she wanted to do something to give back. Katie thank you for doing something so brave and in the process raising £845 to help support kidney cancer patients and their families.

We would also like to thank everyone who supported her activity and donated to her her fundraiser. If you would like to donate to Katie’s GoFundMe page please follow the link below to make a donation.

THANK YOU for your support!

https://www.gofundme.com/f/f3rcq4-im-jumping-out-of-a-plane

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer1 week ago
Tickets are now available for the ceilidh organised by one of our community Steve Goldsmith on Saturday, 9th November 2024 at Newstead Wood School, Avebury Road, Orpington, BR6 9SA to raise funds for us.

This would be a great opportunity to visit London for some shopping or to see an afternoon show and then attend the ceilidh in the evening.

On the night the music will be performed by the very talented band Panjandrum who have over 100 years musical experience between them.

Please join Steve and Jan for an evening of ceilidh dancing to the excellent music of the fine multi-instrumentalists of Panjandrum, or if you would prefer to just listen then you are most welcome too.

Time is 7.30pm until 11.00pm.

Tickets are (£15 for adults, £10 for under 18s, and free for under 7s: booking charges apply) https://wegottickets.com/event/616845

Tickets will be at the door on the night for more information please contact: fundraising@actionkidneycancer.org

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer1 week ago
Exciting news for patients taking immunotherapy for kidney cancer: The Francis Crick Institute and The Royal Marsden NHS Foundation Trust are leading a nationwide team of universities, hospitals and industry in research to help understand patient's responses to immunotherapy and immunotherapy side effects in cancer.

Read more about the MANIFEST research programme on our website here:
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
316 signatures are still needed! Nina’s Law - Enable Carers to Continue Care Visits for Disabled Patients in Hospitals
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