Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

7 Apr 2025

IKCC Global Kidney Cancer Summit

2 Apr 2025

Europe has approved subcutaneous nivolumab for solid tumours

28 Mar 2025

The Big Cancer52 Conversation

24 Mar 2025

A urine test to detect the return of kidney cancer

24 Mar 2025

Spotting symptoms early: the importance of early diagnosis

24 Mar 2025

Health-related quality of life with belzutifan versus everolimus for advanced kidney cancer

10 Mar 2025

Combinations of pembrolizumab and targeted therapies for advanced clear cell kidney cancer

10 Mar 2025

Safe Sick Pay Campaign Update

27 Feb 2025

FDA grants Priority Review status for TLX250-CDx for kidney cancer PET/CT scans

25 Feb 2025

Kidney cancer research highlights from ASCO GU 2025

19 Feb 2025

Spotting symptoms early: the importance of early diagnosis

13 Feb 2025

Cancer Research UK - 74,000 cancer patients not treated on time in 2024

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer7 days ago
We are delighted that sisters Michelle Ashley and Donna Pallot are doing a skydive on July 14th, 2025 to raise funds for us. Thank you!

On December 27th, 2024, Michelle and Donna lost their beautiful sister, Sarah, to kidney cancer. In Sarah’s honour, Michelle and Donna are doing a skydive on what would have been Sarah’s 46th birthday.

They are raising funds for Action Kidney Cancer, to ensure that others who are battling kidney cancer receive the support and care they need and to raise awareness of kidney cancer.

If you would like to read more about Sarah and to honour Sarah’s legacy. you can read more by following the link below:

https://actionkidneycancer.org/event/a-skydive-in-memory-of-sarah-july-2025/

#kidney cancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer7 days ago
We have had a busy few weeks sharing the kidney cancer patient perspective to help ensure their needs are heard.

We were invited on Thursday April 10th to the NHS East of England Cancer Alliance Urological Nurse meeting, whilst there we met with around twenty surgical nurses who care for kidney cancer patients.

This was a great opportunity to share with them the resources we have that will help them in their role and also share with them how we support kidney cancer patients and their families.

It was great to listen to Anne a kidney cancer patient share her experience and learn from the other speakers.

We know when we work together the outcomes for patients are better.

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
We are now home from attending the @IKCC Global Conference in Madrid, we have had a fantastic three days of learning and sharing our thoughts with 60 of the IKCC affiliates from around the world.

We are now thinking how best to use this learning to help shape how we continue supporting kidney cancer patients and their families in the United Kingdom.

#kidneycancer #bypatientsforpatients #IKCC2025
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
Julia Black, Karen McNee and Steve Pointon have just returned from the the 15th International Kidney Cancer Coalition (IKCC) Global Kidney Cancer Summit on 4th – 6th April 2025 in Madrid, Spain. This annual event brings together over 50 patient organisations and charities from around the world to share best practises for the benefit of the care and treatment of kidney cancer patients on a global basis.

Read more on our website here:
[php_everywhere instance="3"]