Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Community Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

26 May 2023

Cancer Charity Forum

26 May 2023

Coping with the emotional challenges of cancer

25 May 2023

Bisphosphonates for the treatment of kidney cancer bone metastases

23 May 2023

Finding kidney cancer

18 May 2023

Cabozantinib plus atezolizumab in non-clear cell kidney cancer

15 May 2023

Triple combination improves survival in patients with advanced kidney cancer

12 May 2023

NHS cancer backlog reduced

12 May 2023

Quitting smoking reduces risk for kidney cancer progression

9 May 2023

New NHS GP access recovery plan

4 May 2023

Factors influencing kidney cancer outcomes with immunotherapy

20 Apr 2023

CAR T-cell therapy shows promise for the treatment of advanced kidney cancer

14 Apr 2023

Brain metastases from kidney cancer treated with first-line therapies

The theme of @IKCCorg #WKCD2023 on the 15th Of June is Living well with kidney cancer.
This video is from patients around the world talking about the support they received and their quality of life whilst living with #kidneycancer
To watch the video: https://t.co/DWeYSg56Sq https://t.co/dae1xucOZU
From the 15th - 19th May, please help us win £5,000 by voting for us today! We will use this money to support #kidneycancer patients and their families.
We've just added a new Help sheets to our website, named 'Going into hospital for surgery?'
In this help sheet you will find advice and tips from #kidneycancer patients who have had surgery.

To read the new Help sheet and other sheets:
#StrongerTogether https://t.co/KCN1ctWLu9
Please save the date for this year's @IKCCorg World Kidney Cancer Day, it is on the 15th June 2023.
We will be talking about the challenges #kidneycancer patients face maintaining quality of life.
To find out about the day:
#StrongerTogether #WKCD2023 https://t.co/cKvla6dt4p
Please share your views on how to change the way we give immunotherapy treatment for cancer?

The OPTIC study is hosting an online focus group for people affected by #kidneycancer on Tue 23rd May at 7pm.
To take part: mrcctu.optic @ucl.ac.uk
For info: https://t.co/PmRsh1Edj4

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
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Action Kidney Cancer
Action Kidney Cancer5 days ago
Action Kidney Cancer has joined the Cancer Charity Forum, a forum run by NHS England to keep cancer charities updated with NHS initiatives to improve and enhance cancer services across England. They held their quarterly meeting earlier this month.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer5 days ago
Mental and emotional challenges may arise or worsen among people living with cancer. This is particularly true for anxiety and depression, which are common among people with cancer. Anxiety and depression can affect quality of life and make it harder to cope with or finish cancer treatment.

Read more on our website here: https://actionkidneycancer.org/coping-with-the-emotional-challenges-of-cancer/

If you or your loved ones are finding it difficult to cope, we are always here to support and help you through the difficult times.

Please ring our helpline for a chat on 0800 121 8721 or

Email us at support@actionkidneycancer.org or

You can join our closed community forum on Facebook for mutual support from other people and families living with kidney cancer: ACTION KIDNEY CANCER
Action Kidney Cancer
Action Kidney Cancer6 days ago
Kidney cancer bone metastases in the long bones of the body are prone to fractures or bone pain needing treatment with radiotherapy or surgery. A review of the literature was conducted to find out whether the use of bisphosphonates in patients with kidney cancer bone metastases in the long bones results in a reduction in bone pain and/or fractures.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer1 week ago
Using videos from real patients, this article talks about the fact that in the early stages, kidney cancers don't generally cause any signs or symptoms and more than half of all kidney cancers are diagnosed accidentally when someone is having tests done for other conditions or diseases.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer2 weeks ago

Thank you to everyone who has voted already.

Please help us win £5,000 by voting for us today!

In recognition of all the charities who work tirelessly to support Health and Wellbeing, Movement for Good are giving 10 charities £5,000 each in this limited-time special draw.
Please nominate us by following the link below, scroll down, complete the form and asking your friends and family to do the same.

Apologies for any confusion, they still have not updated our new name, please search for Kidney Cancer Support Network.

Together we can do this!


#kidneycancer #StrongerTogether #bypatientsforpatients

#kidneycancer #bypatientsforpatients #StrongerTogether
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