Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

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In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective
Watch all

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer
Read real stories

Latest kidney cancer news

20 May 2022

Mitigating the impact of the pandemic: a lens on kidney cancer and support groups

18 May 2022

Telaglenastat plus everolimus in advanced kidney cancer

17 May 2022

Neoadjuvant axitinib may enable partial nephrectomy of complex kidney tumours

17 May 2022

Quality of life on lenvatinib plus pembrolizumab combination

16 May 2022

Transforming lives, raising productivity

13 May 2022

Tougher cancer diagnostic target as part of government's 'war on cancer'

12 May 2022

Breakthrough COVID-19 infections in vaccinated cancer patients

11 May 2022

MEDI0680 plus durvalumab compared to nivolumab in patients with advanced kidney cancer

11 May 2022

Treatment of local recurrence of kidney cancer after nephrectomy

3 May 2022

Treatment of people who relapse on adjuvant pembrolizumab

3 May 2022

Moderna’s COVID-19 vaccine may be more effective for cancer patients

3 May 2022

Kidney cancer patient summit on immunotherapy/TKI combinations

Check all news
Would you or someone in your circle like to take part in our virtual Lands End to John O’Groats 874 mile challenge? Which allows all levels of fitness to get involved.
For information on how to get involved please follow the link below:

https://t.co/VKdHB1eSxh
#kidneycancer https://t.co/hqW9mYHw6a
ACTION4KC photo
The phase 2 clinical trial (ENTRATA) looked at how safe and tolerable a new medicine called telaglenastat is in patients with #kidneycancer that has spread when used in combination with everolimus.
For more information about the study:
https://t.co/DD8FWZj17R https://t.co/97W6j8jwxD
ACTION4KC photo
There are many ways that you can get involved with us, including patient advocacy, campaigning, volunteering, contributing to our real patient stories or writing a help sheet.
For information please visit our website:
https://t.co/kCSSXoDTdI
#kidneycancer https://t.co/9vuPtTEKWg
ACTION4KC photo
Join us on 16th June 2022 for the World Kidney Cancer Day ‘Talking Treatments’ webinar.
During the webinar, clinicians, patients and carers will discuss how to talk about #kidneycancer treatment options and answer que.
To register:
https://t.co/HcBzG6UrPl https://t.co/FAiKHXfoM5
ACTION4KC photo
A recent study, the health-related quality of life (HRQoL) of patients in the phase 3 CLEAR study are discussed. All 1069 patients in the study were followed up for just over a year for quality of life assessments.
Read more on our website: https://t.co/JXoisK7EAk
#kidneycancer https://t.co/NoRUmJ9phy
ACTION4KC photo
The Association of the British Pharmaceutical Industry (ABPI) has commissioned a report about access to medicines in the UK. The NHS has made progress. However, access to medicines in the UK remains poor, especially compared to other developed countries. https://t.co/uWZz5ZL7zn https://t.co/zWIlei5wLR ACTION4KC photo
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Action Kidney Cancer
Action Kidney Cancer
Would you or someone in your circle like to be part of Team Action Kidney Cancer?

We have created a team to collectively cover the 874 miles from Lands End to John O’Groats, which will allow all levels of fitness to get involved.

All steps taken during the day can be counted, even if you are taking a trip to the shops, going out into the garden, or doing some housework – every step will count towards your goal!

You can count your steps and distance walked using a pedometer, an electronic fitness device (e.g., Fitbit) or an app on your phone (remember to take your phone out with you!) and upload your steps manually.

The challenge has now started, until 31st October 2022, so there is plenty of time to complete this challenge and get your family, friends and colleagues involved.

We would appreciate your help now more than ever: could you walk a few miles in our shoes to show your support?

To register for the team event please follow the link below and click on the button Team Action Kidney Cancer:

https://actionkidneycancer.org/get-involved/lands-end-to-john-ogroats/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
I is for Involved

There are many ways that you can get involved with us, including patient advocacy, campaigning, volunteering, contributing to our real patient stories or writing a help sheet.
If you would like to fundraise for us please look at our fundraising sections where you will find lots of ideas on how you can help, whether that be hosting a Mad Hatters Tea Party, taking on a challenge or read our fund raising pack to find easy ways to get ideas on how to raise some funds for us.
There is even things you can do by joining amazon smile and easy funding that mean we get a donation every time you make a purchase at no cost to you.
Please take time to look at our get involved section on our website for more information:
https://actionkidneycancer.org/get-involved/

#kidneycancer #bypatientsforpateints #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
‘Talking treatments’ webinar
As part of World Kidney Cancer Day on the 16th of June 2022
there is a ‘Talking Treatments’ webinar.
Please join us at the webinar, where clinicians, patients and carers will discuss how to talk about treatment options and will answer your questions.
Please register to join the webinar by following the link:
https://actionkidneycancer.org/get-involved/wold-kidney-cancer-day/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
This phase 2 clinical trial (ENTRATA) looked at how safe and tolerable a new medicine called telaglenastat (a glutaminase inhibitor) is in patients with kidney cancer that has spread when used in combination with everolimus. The patients had already been treated for their cancer. The study also looked at how effective this new combination is at treating the cancer.

Read more on our website here: https://actionkidneycancer.org/26222-2/
Action Kidney Cancer
Action Kidney Cancer
A new study called CAPER has started recruiting patients in the UK. This study is looking at a new combination of two medicines called cyclophosphamide and pembrolizumab for the treatment of people with kidney cancer (renal cell carcinoma, RCC) that is not possible to remove with an operation or has spread to other parts of the body.

It is for people who have already had a first-line treatment with a type of medicine called an immunotherapy (nivolumab, ipilimumab, pembolizumab).

The sites are at the Royal Marsden in London, the Christie in Manchester, the Western General in Edinburgh, and Addenbrookes in Cambridge. For more information, please visit our clinical trials database: https://clinmapstaging.wpengine.com/?job_listing=caper-a-study-of-cyclophosphamide-and-pembrolizumab-for-kidney-cancer-3
Action Kidney Cancer
Action Kidney Cancer
Just over half of the patients from a phase 2 clinical trial looking at giving axitinib to shrink the kidney cancer tumour before surgery (neoadjuvant axitinib) have been looked at. In these 26 patients, kidney tumour size and complexity were significantly reduced. This enabled the patients to have partial nephrectomy, despite the tumours being complicated.

Read more on our website here: https://actionkidneycancer.org/neoadjuvant-axitinib-may-enable-partial-nephrectomy-in-complex-renal-tumors/
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