Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Help & support

Community Forum

Stronger together

Join now

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective
Watch all

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer
Read real stories

Latest kidney cancer news

2 Aug 2022

Quality of life and psychological distress in patients with small renal masses

1 Aug 2022

Adjuvant nivolumab plus ipilimumab for kidney cancer

28 Jul 2022

A moment to celebrate a potentially revolutionary cancer blood test trial

28 Jul 2022

Health-related quality of life with lenvatinib in combination with everolimus

28 Jul 2022

Nivolumab compared to cabozantinib as a second- or third-line treatment

26 Jul 2022

Attitudes towards pharmaceutical companies in the UK

13 Jul 2022

Cabozantinib plus nivolumab and ipilimumab delays progression in kidney cancer

12 Jul 2022

Surgical treatment of metastatic kidney cancer

11 Jul 2022

Statins improve the effectiveness of nivolumab for advanced kidney cancer

11 Jul 2022

Incidence and risk of unplanned conversion from partial to radical nephrectomy

8 Jul 2022

Shared decision-making in kidney cancer

8 Jul 2022

Age differences in patient-reported experience of diagnosis, management, and burden of kidney cancer

Check all news
Have you or a family member been diagnosed with kidney cancer? If so you may wish to join our community forum.
Our forum is managed by patients, carers and family members who understand the emotional and physical effects of #kidneycancer
For more info:
https://t.co/4KEPE7xQRQ https://t.co/RtEVCMv8iQ
ACTION4KC photo
Whilst enjoying this lovely weather why not invite some friends round for a Mad Hatter’s Tea Party?
Enjoy your afternoon with friends and family and then ask them to make a donation, to help us!
For more information:
https://t.co/RMWtGXZ8Cz
#kidneycancer #StrongerTogether https://t.co/KcIaiijJRc
ACTION4KC photo
Keep going team Action Kidney Cancer, congratulations, you've reached Hopetoun Estate.
Just another 303.56 mi until your reach the finish, well done!
Please keep walking in our shoes!
To find out more and support our team:
https://t.co/8zYd0gxTsU

#kidneycancer #StrongerTogether https://t.co/G5LlieGlse
ACTION4KC photo
Are you looking for a great weekend of music and dance? Then please join Steve and his family on the 13th and 14th August 2022 for a Northern Soul Charity Weekender.
For more information on the event and to buy tickets follow the link below:
https://t.co/dYRXNsBn1u
#kidneycancer
If you or someone in your family is affected by #kidneycancer, please visit the Useful resources page on our website, where you will find useful links to various websites containing reliable information.
Please follow the link:
https://t.co/k6vsOEQmoL
#bypatientsforpatients https://t.co/6VgB2sv76X
ACTION4KC photo
Andy Pointon is taking part in the Cork Ironman on 14 August 2022 to raise much needed funds for us to help #kidneycancer patients and @macmillancancer
To support Andy and find out more:
https://t.co/wAtgfyDOnA
#StrongerTogether #bypatientsforpatients https://t.co/vTeXGgoob7
ACTION4KC photo
Follow on Twitter
Action Kidney Cancer
Action Kidney Cancer
Good luck Andy for tomorrow!

Andy Pointon brother of Steve Pointon one of our team is taking part in the Cork Ironman on 14 August 2022 to raise much needed funds for us and Macmillan Cancer Support.

The event consists of a 3.8 km swim, 180 km bike ride and a marathon run.

Andy is raising money to support these two charities for personal reasons.

We realise that these are challenging times for families but if you are able to make a small donation to help Andy reach his goal it would be greatly appreciated.

If you would like to support Andy and read more about why he is completing this challenge please follow the link below:

https://www.justgiving.com/fundraising/andy-pointon1?experiments=donate_now_track_click&successType=StaticDonateButtonClick

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
If you or one of your family or friends have been diagnosed with kidney cancer you may wish to join our community forum.

Our community forum is managed by patients, carers and family members who understand the emotional and physical effects of kidney cancer.

Every member of our community has had their life touched by kidney cancer and knows the worry and fear that a diagnosis brings with it.

It is particularly important to us that when you join our community forum on Facebook, you know you are amongst friends who truly understand how you feel.

If you would like more information and how to join please follow the link below:

https://actionkidneycancer.org/help-support/online-community-forum/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
Whilst enjoying this lovely weather why not invite some friends round for a Mad Hatter’s Tea Party?

Just choose your date, invite your friends and have some great fun!

To host a Mad Hatter’s Tea Party it could not be easier; all you need is some sweet treats and a crazy hat and you are good to go!

There is something for everyone; it can be big or small, in your garden, at a hall or virtually; the choice is yours.

Enjoy your afternoon with friends and family and then ask them to make a donation, to help us!

For more information and to get involved please follow the link below:
https://actionkidneycancer.org/get.../mad-hatters-tea-party/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
Please can you take the time to support this valuable research that will help patients.
The University of Glasgow has asked us to build awareness of the 'Patient reported outcomes study' by asking patients to complete this survey.
If you have a diagnosis of advanced kidney or liver cancer, we’d like you to take part.
The survey is part of a larger project (the PROMs project) organised by the University of Glasgow and the European Oncology Nursing Society, and will help better understand the patient perspective of living with advanced kidney or liver cancer.
The survey will take you around 15-20 minutes to complete.
Please also note that you don’t have to take the whole survey at once. You can start and then click ‘Finish later’ at the bottom of your screen, and can come back to it when you have time.
To read more about the survey and to start please follow the link below:
https://actionkidneycancer.org/.../patient-reported.../

#kidneycancer ]#bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
Keep going team Action Kidney Cancer, congratulations, you've reached Hopetoun Estate situated on the outskirts of Edinburgh.

Just another 303.56 mi to go until your reach the finish - well done!

You have now reached your first Scottish Milestone Hopetoun is a place of outstanding natural beauty, which has Scotland’s finest stately home at its heart.

Hopetoun is a welcoming and thriving 6,500 acre community with a great deal to offer for living, leisure, entertainment and business all the year round.

Take some time to relax and unwind before you proceed onto the next part of your journey through some of the most beautiful Scottish Countryside.

Please keep walking in our shoes!

To find out more and support our team, please follow the link below:

#kidneycancer #bypatientsforpatients #StrongerTogether

https://actionkidneycancer.org/get-involved/lands-end-to-john-ogroats/
Action Kidney Cancer
Action Kidney Cancer
Are you looking for a great weekend of music and dance?

The parents of Steve Pointon one of our team have kindly organised another Northern Soul Charity Weekender as a result of the success of last years event to raise funds for us.

The event will take place on the 13th and 14th August 2022 at Nantwich Town Football Club, Waterlode, CW5 5BS.

Tickets cost £15 a head for the weekend and there will be hot food available all day.

If you would like to join Steve and his family at the event, please follow the link below for more information:

https://actionkidneycancer.org/.../northern-soul-charity.../

#kidneycancer #bypatientsforpatients #StrongerTogether
Follow on Facebook