Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

22 May 2024

Video interview: The new cancer vaccine

16 May 2024

Kidney cancer mutation found in 70% of Japanese patients

14 May 2024

Treatment options in first-line metastatic kidney cancer

10 May 2024

Comparison of cabozantinib with axitinib as second-line treatment for metastatic kidney cancer

10 May 2024

Expert interview about cancer vaccines

10 May 2024

NHS England Cancer Programme progress update – Spring 2024

9 May 2024

New PET imaging agent for kidney cancer

8 May 2024

Factors affecting outcomes after nephrectomy for metastatic kidney cancer

3 May 2024

The ‘mystery’ culprit causing kidney cancer worldwide

26 Apr 2024

New cancer vaccine in development

23 Apr 2024

Sick pay - cancer patients are counting the cost

22 Apr 2024

Lenvatinib plus everolimus for patients with metastatic kidney cancer

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer1 day ago
We recently attended the 4th Crewe & Nantwich Northern Soul Charity Event at The Crozzy Club. Thank you to Dave Pointon, Shirley Pointon and Steve Pointon for organising this 4th event and the last at The Crozzy Club.

It was wonderful to be part of this welcoming family of 200 Northern Soul dancers, they made us so welcome the dancing was wonderful as was the music provided for free by all the DJ's!

On the night we raised a fantastic £2,125 which now takes the rolling total to over £10,000.

The next event will be on the 11th of August, please save the date and we look forward to welcoming you then.

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer4 days ago
In this very interesting interview from the Friends of Renal Oncology Group (FROG) in Oxford, Steve Easton, a kidney cancer survivor from FROG, talks with Professor Lenard Lee, an oncologist from the University of Oxford, about the development of kidney cancer vaccines.

Watch the video interview on our website here:
Action Kidney Cancer
Action Kidney Cancer1 week ago
An international study involving 11 countries, including Japan, the United States and some European countries looked at the genome of 962 people with kidney cancer. This is the largest study of its kind to sequence the genome of kidney cancer patients.

Read about what they discovered on our website:
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
Over the past 10 years or so, the use of immunotherapies has improved the survival of people with advanced kidney cancer.

This study looks at real-world data to determine the time to when the treatment stops working and the cancer starts growing again (progression-free survival) and overall survival times and to identify factors that could predict the outcome of patients treated with immunotherapy combinations as a first-line treatment.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
To date, there have not been any studies that have compared second-line treatments for patients with kidney cancer that has spread (metastatic kidney cancer). This study looked at real-world data to compare the effectiveness of cabozantinib and axitinib (both tyrosine kinase inhibitors) as second-line treatments in patients with metastatic kidney cancer who had previously been treated with a combination of immunotherapies, nivolumab plus ipilimumab.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
In this very interesting interview from the Friends of Renal Oncology Group (FROG) in Oxford, Steve Easton, a kidney cancer survivor from FROG, talks with Professor Lenard Lee, an oncologist from the University of Oxford, about the development of kidney cancer vaccines.

Watch the video on our website here:
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