Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

20 Jun 2024

Why the next UK Government must set out a new strategy for cancer

17 Jun 2024

Patient perspectives on immunotherapy dosing schedules

17 Jun 2024

ASCO 2024: Treatment-free survival with cabozantinib plus nivolumab

14 Jun 2024

Summary of kidney cancer highlights from ASCO 2024

12 Jun 2024

Stereotactic radiotherapy plus immunotherapy for brain metastases

6 Jun 2024

Safe Sick Pay Campaign

5 Jun 2024

Parenting with Cancer

5 Jun 2024

Together for Kidney Cancer Shared Decision Making

22 May 2024

Video interview: The new cancer vaccine

16 May 2024

Kidney cancer mutation found in 70% of Japanese patients

14 May 2024

Treatment options in first-line metastatic kidney cancer

10 May 2024

Comparison of cabozantinib with axitinib as second-line treatment for metastatic kidney cancer

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer2 days ago
Please can you help? Cancer52 would like to hear from patients with a rare and less common cancer, which includes kidney cancer.

Patient insights from the survey will to help shape Cancer52’s work to raise the collective voice of rare & less common cancers and ensure the kidney cancer voice is heard.

All responses to the survey are anonymous and the survey is
fully GDPR compliant.

Please take the survey: https://bit.ly/C52survey

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer2 days ago
We will be continuing to promote World Kidney Cancer Day 'we need to listen' awareness for the coming weeks and provide accurate up to date information to support people affected by a kidney cancer diagnosis.

If you don’t feel listened to:
You might want to request a second opinion – it is always good to look for more than one source of information to feel empowered to make the best decisions about your care and treatment to meet your personal needs.

If you would like to find out more abut this please follow the link below:
https://actionkidneycancer.org/wp-content/uploads/2024/06/IKKC-WKCD-2034-IfYouDontFeelListenedTo-Guide-PDF.pdf

#WKCD24 #KidneyCancer
Action Kidney Cancer
Action Kidney Cancer3 days ago
With a general election only 2 weeks away, political parties have the opportunity to show bold leadership on cancer. In England, the next UK Government should commit to setting out a 10-year strategy for cancer and creating a dedicated leadership structure, a National Cancer Council.

Action Kidney Cancer are speaking with #onecancervoice who are calling on all political parties to commit to supporting a long term cancer strategy to improve cancer outcomes in the United Kingdom.

Read more on our website here:
Action Kidney Cancer
Action Kidney Cancer3 days ago
To mark World Kidney Cancer Day, my colleague Steve Pointon visited Ipsen to speak with Ipsen colleagues about his experience of living with kidney cancer.

This year's theme of 'Listening' and highlighting the benefits of shared decision making, of which Steve Pointon Counselling and Support was able to do first hand.

Listening and empowering kidney cancer patients to feel confident during conversations with healthcare professionals when planning care can have a very positive impact on their mental health and quality of life.

#KidneyCancer #WKCD24
Action Kidney Cancer
Action Kidney Cancer3 days ago
We haver been out and about in the last week ensuring that the voice of kidney cancer patients is being heard, yesterday Julia and Sharon were supporting renal oncologists from around the United Kingdom discussing future #kidneycancer research in the build up to #WKCD24 'We need to listen'
It is great that we are part of these important conversations.

#KidneyCancer
Action Kidney Cancer
Action Kidney Cancer3 days ago
On this day we have launched a new video in our 'Ask the expert series'. This video is about the role of the multidisciplinary team (MDT) to discuss the best treatment plan for each individual patient, and seems relevant to todays theme 'We need to listen',

To watch the video please follow the link below:

#single/0" target="_blank" rel="noreferrer">https://actionkidneycancer.org/help-support/ask-the-expert/#single/0

#KidneyCancer #WKCD2024
Action Kidney Cancer
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