Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Help & support

Community Forum

Stronger together

Join now

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective
Watch all

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer
Read real stories

Latest kidney cancer news

28 Jun 2022

Papillary type I vs type II renal cell carcinoma

28 Jun 2022

AUA 2022: Should everyone have adjuvant therapy after surgery for high-risk kidney cancer?

21 Jun 2022

ASCO 2022: Sequencing of kidney cancer medicines

15 Jun 2022

High street pharmacies spot cancers in new NHS early diagnosis drive

14 Jun 2022

Sequencing of treatments for advanced/metastatic kidney cancer

8 Jun 2022

Three years follow-up data from the belzutifan study for pre-treated metastatic kidney cancer

8 Jun 2022

Does the size of response to cabozantinib plus nivolumab affect clinical outcomes?

8 Jun 2022

Can durvalumab or savolitinib alone or in combination with tremelimumab improve survival in patients with metastatic kidney cancer?

8 Jun 2022

Can adjuvant everolimus prevent recurrence following surgery?

8 Jun 2022

Is early treatment with adjuvant therapy healthy, cost effective and wise: the patient perspective?

8 Jun 2022

Scottish Government's new 10-year cancer strategy

7 Jun 2022

Health and Care Bill now an Act of Parliament

Check all news
The 2022 American Urological Association meeting included a session from the Society of Urologic Oncology. At the session it was discussed whether everyone should receive medication after surgery for high risk #kidneycancer (adjuvant therapy).
Read more:
https://t.co/9sJaAZLZIV
Papillary renal cell carcinoma (pRCC) is the second most common subtype of #kidneycancer and is further subdivided into type I and type II (pRCC).
These two types of papillary RCC could potentially be different in terms of survival outcomes.
Read more: https://t.co/s4GuHjnPLZ
Thanks to everyone who has joined our team for our Lands End to John O'Groats virtual event so far.
If you would like to join our team, create your own or take part as an individual and support people affected by #kidneycancer:
Please read:

https://t.co/VKdHB1eSxh

#kidneycancer https://t.co/aRuKMADvns
ACTION4KC photo
We've been asked by the University of Glasgow to build awareness of the 'Patient reported outcomes study'
Are you an adult living with advanced #kidneycancer or advanced #livercancer?
If so this international #survey is now open. Please have your say:
https://t.co/S72J8VoSKj https://t.co/1UdKW0SuXa
ACTION4KC photo
O is for one to one support
We offer support in a variety of ways, where you can share your thoughts in a safe space or if you are looking for specific information about your #kidneycancer diagnosis please follow the link to access our support services:

https://t.co/mylsCasrXU https://t.co/fsteZ6NENW
ACTION4KC photo
Join us this summer by hosting a #MadHattersTeaParty
to raise funds to support families affected by #kidneycancer it could not be easier, all you need is some sweet treats, a crazy hat and you are good to go!
For information on how to host your tea party:
https://t.co/RMWtGXZ8Cz https://t.co/ApsXRgXmn4
ACTION4KC photo
Follow on Twitter
Action Kidney Cancer
Action Kidney Cancer
Thank you to everyone who has joined our team so far, for our Lands End to John O'Groats virtual event.

If you would like to join our team, create your own team or take part as an individual then please follow the link below where you will find all the information required.

Thank you for helping us fund raise to provide accurate information and support for people affected by kidney cancer.

https://actionkidneycancer.org/get-involved/lands-end-to-john-ogroats/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
Papillary renal cell carcinoma (pRCC) is the second most common subtype of kidney cancer and is further subdivided into type I and type II papillary RCC. These two types of papillary RCC could potentially be different in terms of survival outcomes.

Read more on our website here: https://actionkidneycancer.org/papillary-type-i-vs-type-ii-renal-cell-carcinoma/
Action Kidney Cancer
Action Kidney Cancer
The 2022 American Urological Association (AUA) Annual Meeting included a session from the Society of Urologic Oncology (SUO). During this session it was discussed whether everyone should receive medication after surgery for high risk kidney cancer (adjuvant therapy). It was noted during the presentation that the perfect adjuvant therapy would not be expensive, easy to tolerate, able to kill cancer cells that cannot be seen on scans, and would results in good survival outcomes for patients.
Read more on our website here: https://actionkidneycancer.org/aua-2022-should-everyone.../
Action Kidney Cancer
Action Kidney Cancer
We are delighted to have been asked by the University of Glasgow to build awareness of the 'Patient reported outcomes study' by asking patients to complete this survey.

If you have a diagnosis of advanced kidney or liver cancer, we’d like you to take part.

The survey is part of a larger project (the PROMs project) organised by the University of Glasgow and the European Oncology Nursing Society, and will help better understand the patient perspective of living with advanced kidney or liver cancer.

The survey will take you around 15-20 minutes to complete.

Please also note that you don’t have to take the whole survey at once. You can start and then click ‘Finish later’ at the bottom of your screen, and can come back to it when you have time.

To read more about the survey and to start please follow the link below:

https://actionkidneycancer.org/research/patient-reported-outcome-measures-survey/

#kidneycancer ]#bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
O is for one to one support

If you are looking for some one to one support where you can share with someone your thoughts in a safe space or you are looking for specific information about your diagnosis, we can help.

We offer this in a variety of ways, including our one to one helpline, email support and community forum.

To access these services please follow the link below:

https://actionkidneycancer.org/help-support/
#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
Action Kidney Cancer
Please join us this summer by hosting a Mad Hatters Tea Party.

Mad Hatter’s tea parties will be taking place during the summer months, just choose your date!

There is something for everyone; it can be big or small, in your garden, at a hall or virtually; the choice is yours.

Every afternoon tea is enjoyed as a way to help us support families affected by kidney cancer.

To host a Mad Hatter’s Tea Party it could not be easier; all you need is some sweet treats, a crazy hat and you are good to go!

For information and tips on how to host you tea party, please follow the link below:

https://actionkidneycancer.org/get-involved/mad-hatters-tea-party/

#kidneycancer #madhatters #StrongerTogether
Follow on Facebook