NHS Choices is the official website of the NHS in England, and the UK’s biggest health website providing an award winning, comprehensive health information service with thousands of articles, videos and tools. Information about kidney cancer can be found here.
Cancer Research UK is the world’s leading charity dedicated to beating cancer through research. The About Cancer section contains a wealth of information about lots of different types of cancer. Information about kidney cancer can be found here. Cancer Research UK also publishes a wealth of information about the incidence and risks of kidney cancer in the UK.
Macmillan Cancer Support provides a support service for cancer patients, with advice about money worries and getting back to work, and information about various cancers. Information about kidney cancer can be found here.
Kidney Cancer UK has some comprehensive information about kidney cancer on the website and provide a free Understanding Kidney Cancer booklet to patients upon request. Please click here to visit their website.
Patient is a trusted medical information and support website with information about wellbeing, kidney cancer, and medicines, in addition to various online discussion forums. Visit their website here.
Diet, Nutrition, Physical Activity and Kidney Cancer is a Continuous Update Project from the World Cancer Research Fund International, a not-for-profit organisation that leads and unifies a network of cancer charities with a global reach, dedicated to the prevention of cancer through diet, weight and physical activity. Read Diet, Nutrition, Physical Activity and Kidney Cancer here.
European Association of Urology (EAU) provides a website especially for patients. The main purpose of this website is to provide reliable urology information, which is unbiased, comprehensive, and clear. All the materials published take into account existing scientific evidence, the experience of medical experts and nurse practitioners, as well as the views of patients. The EAU is an independent non-profit organisation, which works to advance the level of urological care in Europe. Please click here to visit their website. They also produce guidelines for the treatment and management of kidney cancer.
NIH National Cancer Institute is an American organisation that publishes a fact sheet with some useful, clearly explained information about biological therapies for cancer, in particular immunotherapy. Visit their site here.
National Comprehensive Cancer Network (NCCN) is a not-for-profit alliance of 27 of the world’s leading cancer centres dedicated to improving the quality, efficiency, and effectiveness of care for patients with cancer. NCCN develops resources that present valuable information to patients and caregivers, as well as to clinicians and health care professionals. They have recently published guidelines for kidney cancer patients, which are easy-to-understand resources based on the same clinical practice guidelines used by health care professionals around the world to determine the best way to treat a patient with kidney cancer. Visit their website and download a copy of the guide here.
National Disease Registration Service (NDRS) is part of NHS Digital. The NDRS collects data on patients with cancer, congenital anomalies and rare diseases to help the NHS, researchers, industry partners, and charities to understand these diseases, improve diagnosis, plan NHS services, improve treatment, evaluate policy, improve genetic counselling, and carry out research. The NDRS is made up of two disease registers. These are the National Cancer Registration and Analysis Service (NCRAS) and the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS). Visit their website here.
Genetics of kidney cancer In this presentation by Dr Fuki Marie Hisama from the University of Washington at the Kidney Cancer Association Patient and Survivor Conference in Northern California, July 2016 talks about: What is medical genetics? When should a kidney cancer patient see a genetics provider? What are the hereditary causes of kidney cancer? And genetic testing. Watch the video on YouTube here.
Practice Update – VHL Overview This video, produced by Practice Update, is a comprehensive overview of Von Hippel-Lindau (VHL) syndrome from Dr Eric Jonasch from the MD Anderson Cancer Centre in Houston, Texas. Watch the video here.
ESMO Patient Guide on Cancer Pain Management The European Society for Medical Oncology (ESMO) have produced a useful patient guide for the management of cancer pain. Pain can be due to the cancer itself, cancer treatment, or a combination of both. This patient guide discusses the many ways to manage different types of cancer-related pain. The pain relief offered depends upon the type and severity of the pain, as well as the patient’s general health and level of fitness. Patients should be fully informed and involved in decisions about treatment options. Download the guide from the ESMO website here.
ecancerpatient toolkit on Biosimilar Medicines Gives patients a complete overview of biosimilars and helps them separate fact from fiction. In 2017, both the European Medicines Agency and the US Food and Drug Administration (FDA) approved the first bevacizumab biosimilar, Zirabev, which can be used for the treatment of kidney cancer. View the patient toolkit on the ecancerpatient website here.