Patient reported outcome measures (PROMs) survey

Welcome

This international survey aims to understand the experiences of people who live with advanced kidney cancer or advanced liver cancer. It is part of a larger project (the PROMs project) organised by the University of Glasgow and the European Oncology Nursing Society. Action Kidney Cancer has been asked to build awareness of the project to encourage kidney cancer patients for the survey.

If you have a diagnosis of advanced kidney or liver cancer, we’d like you to take part. No matter where you live. The survey will help us better understand your perspective of living with advanced kidney or liver cancer. We will use this information to train health professionals so that they can offer people like you better care that is tailored to your needs. So, your opinion is key.

The survey will take you around 15-20 minutes to complete.

We know that finding 15-20 minutes just for a survey can be tricky. However, you might feel there’s a bit more time for it while waiting at the hospital for your medical appointment, treatment or scan, or while you’re on the bus or train.

Please also note that you don’t have to take the whole survey at once. You could start now, but you can always click ‘Finish later’ at the bottom of your screen, and you can come back to it .

Before you decide, please make sure to read the Participant Information Sheet and Privacy Notice at the start of the survey.

You can access the survey by clicking here or on the image opposite.

For more information about the PROMs project by the European Oncology Nursing Society, please visit their website here.

If you have any questions for the research team, they would be happy to hear from you: research.assistant@cancernurse.eu

If you need any further information or help, please do not hesitate to email us or ring our helpline.