Dena Battle from KCCure, an American kidney cancer patient organisation, describes the difference between misinformation and disinformation. She tries to dispel the common myths regarding the diagnosis and treatment of kidney cancer and speaks about what is causing the distribution of misinformation among patient communities. A number of factors are involved, such as new data, data driving new treatment practices, lack of consensus where there isn’t enough evidence to support treatment guidelines, shared decision-making with the patient, and statistical bias in the community in which the information is being shared. From a patient advocacy perspective, it is important to identify these myths and what drives them to help improve messaging and make our communities even stronger for our patients and their families.

Watch the video interview on UroToday here