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In this article, Deb Maskens, founder of Kidney Cancer Canada and board director of the International Kidney Cancer Coalition (IKCC) recommends that patients with kidney cancer should be thinking about clinical trials at every step of their journey, not just after a line of therapy has stopped working for them.
Ms Maskens, an advanced kidney cancer patient herself, has three lessons from her own experience that she wanted to share:
- Your doctor does not know everything
- The importance of shared decision-making
- Patient or carer’s role as information broker.
She then goes on to describe the importance of patients taking part in clinical trials, and how patients can better equip themselves for discussions about clinical trials with their healthcare teams.