Results from the International Kidney Cancer Coalition (IKCC) global patient survey, conducted in 43 countries and almost 2,000 kidney cancer patients and carers, were presented at the European Society for Medical Oncology (ESMO) conference in Barcelona over the weekend.
The 35-question survey was designed to identify geographic variations in patient education, experience and awareness, access to care, best practices, quality of life, involvement in clinical trials, and to highlight unmet needs.
The main conclusions from the survey were as follows:
- The survey highlighted the unmet needs of kidney cancer patients and needs further investigation
- This was the first global survey of kidney cancer patients and carers, and serves as a benchmark for future data collection
- There is a need to improve communication with patients about diagnosis, psychosocial impacts, and clinical trials.