Questions about the trial

• What is the purpose of the trial?
• How long will I be in the trial?
• How many assessments/hospital visits are there and when do they take place?
• What kinds of tests and treatments are involved?
• How will the doctor know if the treatment is working?
• How will I be told about the trial’s results?
• How long do I have to make up my mind about joining this trial?
• Who can I speak with about questions I have during and after the trial?
• Who will be in charge of my care?
• Is there someone I can talk to who has been in the trial?

Questions about risks and benefits

• What are the possible side effects or risks of the new treatment?
• What are the possible benefits?
• How do the possible risks and benefits of this trial compare to those of the standard treatment?

Questions about your rights

• How will my health information be kept private? And what happens to my health information after the trial?
• What happens if I decide to leave the trial?
• Do I have to give a reason if I decide to leave the trail?
• Will my treatment and care be affected if I decide to leave the trial?

Questions about costs

• Will I have to pay for any of the treatments or tests?
• Will I have to pay for travel to the hospital for trial assessments/hospital visits, including car parking if I travel by car?
• If I don’t have my own transport, can I get help travelling to the hospital for trial assessments/hospital visits?

Questions about daily life

• How could the trial affect my daily life?
• How often will I have to come to the hospital or clinic?
• If I need to go to another hospital for some of the tests, how far away will this be?
• Will I have to stay in the hospital during the clinical trial? If so, how often and for how long?
• Will I have check-ups after the trial? If so, how often are the check-ups?

Questions about other treatments

• What are the other treatments for my kidney cancer, including standard treatments?
• How does the treatment I would receive in this trial compare with the other treatments?