The latest Cancer52 All Member Meeting took place on 19 February 2022, with some interesting topics covered:

Help Us Help You

NHS England shared an update on the Help Us Help You campaign, which was launched on Wednesday 6 March 2022. This campaign focuses on trying to get people to come forward if they are worried about something. Please see the press release from the NHS about the campaign here. Action Kidney Cancer is supporting the campaign on social media.

Help Us Help You – Case study request

To support the upcoming Help Us Help You Cancer Campaign, Cancer 52 are looking for real life case study stories. Ideally, this would be people who had been to their GP with cancer symptoms and had a cancer diagnosis, or can also be stories of people who were told they did not have cancer. The aim of the campaign is to tackle the fear about going to your GP with suspected cancer symptoms and encourage more people to come forward for checks.

Cancer52 are looking for people ideally aged 45+ (their main target audience), as well as people who ideally saw their GP early to emphasise the benefits of an earlier presentation.

Cancer52 are looking for case studies to take part in a range of opportunities including:

  • Appearing in film to speak about their experience (can be filmed at home)
  • Possible media interviews around the research (starting week commencing 28 February 2022)
  • Media interviews around the release of the film (starting week commencing 14 March 2022)

If you are interested in taking part, please email us.

IMF Consultation Response submission

The Innovative Medicines Fund (IMF) is similar to the Cancer Drugs Fund (CDF), but for non-cancer treatments. Cancer52, along with input from Action Kidney Cancer, has submitting a response to the consultation, which closed on 11 February 2022.

This consultation was important for people with rare and less common cancers because of link between the IMF and the CDF.

Patient survey – Cancer services

Cancer52 has launched a short survey aimed at people living with a rare or less common cancer to find out their views on cancer services. The survey consists of three short questions, along with some questions about their background.

The results of the survey will be used in the Cancer52 response to the government’s Cancer Plan. The survey is now live and will be open until 14 March 2022. You can find it here. Please complete it if you can. If we receive over 20 responses from any particular cancer type, the information will be shared with the relevant charity.

If you have any questions, please email us.